City2Surf 2011 - Supporting the Steve Waugh Foundation and kids with Rare Diseases - the little lioness

City2Surf 2011 – Supporting the Steve Waugh Foundation and kids with Rare Diseases

So, I went and did it. I entered the City2Surf. 14km.

I won’t die doing it, but I’ll have fun trying!

I decided, after browsing around at the charities available (including bible groups and missionaries… ) I settled on the Steve Waugh Foundation:

The Steve Waugh Foundation is committed to a coordinated approach to the service, identification, treatment and cure of rare diseases – primarily focusing on children (0-25 years of age).
We strive to improve the quality of life for children and families affected by rare diseases.

The rare disease patient is the orphan of the health system, often without diagnosis, without treatment, without research and therefore, without reason to hope.

Families and carers of children with rare diseases experience significant psychological stress due to social isolation, unemployment, diagnostic delays, lack of information and difficulty accessing appropriate health care.

The Steve Waugh Foundation is working to help change things for children with a rare disease by giving hope, providing medicine, equipment and treatment, supporting education and research, partnering with other like agencies and organisations as well as supporting specific projects and programs. The Foundation has already supported over 200 families through generous donations from our Patrons, corporate partners and supporters. Over a million dollars has been used for medication, treatment, specialised equipment and financial support.

I first heard of the foundation when someone at work was able to obtain funding for a piece of equipment through them, after approaching funding bodies (government and NGOs) all over and not having success.

So, if you’re able, sponsor me in this year’s City2Surf. (Pro tip: Sponsor before June 30 to claim on this year’s tax return!) I’ll be giving updates on sponsorship over the next two months and of course my efforts to train towards a 14km run!!

There’s also a widget in the sidebar that will keep track of all you lovelies. Yes, I’m setting a goal of $1000. But aim high, I say!

Anyone else going in it? :D

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1 comment for “City2Surf 2011 – Supporting the Steve Waugh Foundation and kids with Rare Diseases

  1. June 8, 2011 at 8:35 am

    Sadly I will still be overseas so wont be able to race! I have always wanted to do this one!

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