Liam Archives - Page 2 of 5 - the little lioness

Tag: Liam

So, how does a non-mum review items given to her cos she hangs around with the Mummy bloggers??

She, of course, passes them onto her sister and her kids. As you can see, Ez LOVES the spoon and sippy cup I think I got in the grab bag from the Digital Parents Conference.

And the whole family gets great use out of the air fryer I reviewed yonks ago. My sister has even cooked a roast in it!!!

A Liam Self-portrait

One of those posts with photos of my nephew

Because instead of doing anything productive today, I spent much of it vomiting and dashing to the loo.

But look! Cute kid photos from visiting the family on Thursday.

Special Little Liam

He spent the day with this World Rare Diseases Day sticker on his head.

Being special.

Ezri

While his six month old sister has learned to crawl, and with good pace, when there is food around. Liam left the crusts of this peanut butter toast on his plate, and Ez was after it and had it straight in her mouth.

Same with the cake bits Liam dropped. Ezri’s head turns, spots them, and she’s off!

World Rare Diseases Day 2012

Today, the rare day of Feb 29, is World Rare Diseases day.

What IS a rare disease???

  • A rare disease in Australia is defined as one which affects 1 in 10,000 people or less.
  • There are up to 8000 known rare diseases, the majority have a genetic origin.
  • Although each disease is rare, collectively they affect up to 10% of the population.
  • That is up to 2 million Australians of which up to 400,000 children.
  • Rare diseases can be life-threatening or chronically debilitating.
  • Most begin in childhood and continue throughout life.
  • Obtaining a definitive diagnosis is often difficult and delayed, if diagnosed at all.
  • Neurological and intellectual disabilities occur in about half of all cases regardless of disease type and lead to a loss of independence and opportunities.
  • Many rare diseases have no cure

In Australia, the Steve Waugh Foundation is dedicated to supporting those with rare diseases and their families, as these kids with ‘orphan’ diseases often don’t fall under established support and funding services.

Liam's 2nd Birthday Party

Dear little nephew Liam is one of the kids who falls under the umbrella of rare conditions, with his Spondyloepimetaphyseal dysplasia. With something the local therapists have never seen, and the specialists only come across rarely, it can be hard to get answers and to know if you’re on the right track with monitoring of development.

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