Liam

On blogging, and convincing others to blog

May 7, 2012 · 0 comments

So.

I own the domain RishniRatnam.com, and I host my bother in law at http://www.johndee.net.au/….

But of most interest to most of you…..

I now have my sister blogging. At http://gatheringpieces.littlelioness.net/

Visit her.

Tell her she is awesome. Cos she is.

Because I want there to be a place for parents with kids with Spondylmetaphyseal Dysplasia to find each other. Even if just to look at each other and realise that there are other who have no idea how this will all turn out for them.

For a community.

For Jennie. And John. And Liam. And Ezri.

And the rest.

Tagged as: blogging, family, Liam, Spondylmetaphyseal Dysplasia

{ 0 comments }

Some day are Dizzy Days

May 7, 2012 · 1 comment

****************

Don’t forget to enter to win an awesome Shanalogic necklace!

Entries close midday, Wed 9th May!

Tagged as: Ezri, Liam, video

{ 1 comment }

So, how does a non-mum review items given to her cos she hangs around with the Mummy bloggers??

April 28, 2012 · 4 comments

She, of course, passes them onto her sister and her kids. As you can see, Ez LOVES the spoon and sippy cup I think I got in the grab bag from the Digital Parents Conference.

And the whole family gets great use out of the air fryer I reviewed yonks ago. My sister has even cooked a roast in it!!!

A Liam Self-portrait

Tagged as: Ezri, kids, Liam, reviews

{ 4 comments }

Making a tough call

April 25, 2012 · 2 comments

Back in Newcastle for a while, to regroup, get things in perspective, look after myself, and play with some adorable little people.

It could be worse!

Tagged as: Ezri, Liam, mental health, newcastle, work

{ 2 comments }

One of those posts with photos of my nephew

March 10, 2012 · 1 comment

Because instead of doing anything productive today, I spent much of it vomiting and dashing to the loo.

But look! Cute kid photos from visiting the family on Thursday.

He spent the day with this World Rare Diseases Day sticker on his head.

Being special.

While his six month old sister has learned to crawl, and with good pace, when there is food around. Liam left the crusts of this peanut butter toast on his plate, and Ez was after it and had it straight in her mouth.

Same with the cake bits Liam dropped. Ezri’s head turns, spots them, and she’s off!

Tagged as: Ezri, Liam, Spondyloepimetaphyseal dysplasia, world rare diseases day

{ 1 comment }

World Rare Diseases Day 2012

February 29, 2012 · 6 comments

Today, the rare day of Feb 29, is World Rare Diseases day.

What IS a rare disease???

A rare disease in Australia is defined as one which affects 1 in 10,000 people or less.
There are up to 8000 known rare diseases, the majority have a genetic origin.
Although each disease is rare, collectively they affect up to 10% of the population.
That is up to 2 million Australians of which up to 400,000 children.
Rare diseases can be life-threatening or chronically debilitating.
Most begin in childhood and continue throughout life.
Obtaining a definitive diagnosis is often difficult and delayed, if diagnosed at all.
Neurological and intellectual disabilities occur in about half of all cases regardless of disease type and lead to a loss of independence and opportunities.
Many rare diseases have no cure

In Australia, the Steve Waugh Foundation is dedicated to supporting those with rare diseases and their families, as these kids with ‘orphan’ diseases often don’t fall under established support and funding services.

Dear little nephew Liam is one of the kids who falls under the umbrella of rare conditions, with his Spondyloepimetaphyseal dysplasia. With something the local therapists have never seen, and the specialists only come across rarely, it can be hard to get answers and to know if you’re on the right track with monitoring of development.

Tagged as: Liam, Spondyloepimetaphyseal dysplasia, Steve Waugh Foundation, world rare diseases day

{ 6 comments }

Putting the children to work – Wordless Wednesday

December 7, 2011 · 0 comments

Tagged as: kids, Liam, water

{ 0 comments }

Goodies from Honeybee

September 29, 2011 · 0 comments

What the hell, this thing is as big as me!!!

From Honeybee, Darby Street Cooks Hill.

And coffee from Glee Roasters :) Bestest coffee.

Tagged as: baby, coffee, Darby Street, Ezri, Liam

{ 0 comments }

Liam’s Second Birthday Party – Sugar hangovers all ’round

September 27, 2011 · 5 comments

It’s my party and I’ll bite every lolly on the table and put it back in the bowl if I wanna!

It was the sugar fueled 2nd birthday party of awesome on Sunday.

There were cupcakes

Presents!

The bike I got him. A little big. Oh well!

Not the dinosaur, daddy!

Portugal.

No way they’re related ;)

Don’t think I’m the only one with a sugar crash!

Tagged as: birthday, Liam, party

{ 5 comments }

Happy 2nd Birthday Liam!

September 23, 2011 · 2 comments

The cake will be all yours on Sunday :)

(and much spoilage!)

Tagged as: Liam

{ 2 comments }

Awesome Weekend – City2Surf, New Niece, Chilling with Rish – Warning photo flood ahead!!!

August 15, 2011 · 7 comments

HUGE weekend. Rish arrived midnight Friday, we went to Newcastle Saturday, and while we were on the F3, I got a text from my brother in law to say they were at the hospital because my niece was on her way!! :)

I got dropped off at my parents place, and got to muck around with my nephew for a few hours :)

We wore funnels as hats, tinman style

Had rides in the washing basket.

Did some gardening

Including a little repotting.

Had a tea party with the empty mugs

Build a tower and didn’t break anything

Then it was time to head to the hospital with my parents and meet little Ezri Rae…

Born 1:20pm, August 13, 52cm, 7lb 3.

A serious little thing, Ezri is like Ezra, and means “helper”.

Perfect timing, two days before due date. All are going well, but tired, I’m told.

After time spent with family, and a later than realised dinner with Rish’s side, we got back to Sydney after midnight… with the alarm set for the big race… City 2 Surf!

What a day! I arrived at the starting point just after my group (blue) started… not to worry it took 10 mins to get to the start anyway!

What awesome atmosphere. I may have been running alone, but I never really was!

Things got tough at the end of hearbreak hill, had to walk for a bit, but then finished strong, and got in around my estimated time – by my time I was in in 1 hour 47 minutes. Only an hour more than the winner ;)

I’m hurting now!!!!! :D

Thankyou THANKYOU thankyou for all of you who sponsored me! I have raised $660 for the Steve Waugh Foundation to help awesome kids with rare diseases who might otherwise have nowhere else to go for funding support. Thank you for your support.

Bring on 2012!! :D